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Showing posts from October, 2012

National Infant and Pregnancy Loss Remembrance Day

October 15th is National Pregnancy Loss and Remembrance Day.

We are coming up on October 24th, which is what would have/could have been the 1st birthday of our son Kyle.  He died at Toronto Sick Kids last November from an E. Coli infection while waiting for a liver transplant, which was to be the treatment for a genetic metabolic disorder called Ornithine Transcarbamylase Deficiency aka OTC Deficiency.

It's an extremely difficult genetic situation to manage with drugs until the point of transplant. But the doctors were hopeful. They were willing to try everything  possible for us. It was the very first time that Sick Kids was dealing with a case where it was known before birth that a liver transplant would be needed.  In order to have him on the transplant list immediately after birth and to help search for a living liver donor, we found out his blood type before being born, through the extra sample of amniotic fluid during the pregnancy.  There were high risk pregnancy specialis…