UCD

I am a carrier of Ornithine Transcarbamylase Deficiency, a Urea Cycle Disorder.

I have had two children born and affected with this disorder.
Colin Isaac Babcock             December 18 to 20, 2003
Kyle Alexander Babcock     October 24 - November 8, 2011

I also had two brothers, a cousin, and an uncle born with this disorder.  All died at 3 days old, with the exception of Kyle (2011), who was being treated to save him from it.  He died of an E. Coli infection that turned septic while waiting for a liver transplant.

Related blog posts in chronological order:

My Son Colin - written by my husband Mike
OTC - A Genetic Abnormality
Pregnancy Week 8
Pregnancy Week 12
Inventory of Baby Gear 10 Years Later
Amniocentesis
50/50 Chances
Excited and Worried - Written by my husband
http://counterbalancedcoquette.blogspot.ca/2011/06/still-waiting-on-genetic-results-from.html
http://counterbalancedcoquette.blogspot.ca/2011/06/not-what-we-were-hoping-for.html
http://counterbalancedcoquette.blogspot.ca/2011/06/fetal-echo-cardiogram.html
http://counterbalancedcoquette.blogspot.ca/2011/07/upcoming-this-week.html
http://counterbalancedcoquette.blogspot.ca/2011/07/treatment-plan.html
http://counterbalancedcoquette.blogspot.ca/2011/07/upcoming-meet-with-liver-transplant.html
http://counterbalancedcoquette.blogspot.ca/2011/07/liver-transplant-team-meeting-results.html
http://counterbalancedcoquette.blogspot.ca/2011/07/this-weeks-medical-agenda.html
http://counterbalancedcoquette.blogspot.ca/2011/08/testing-babys-blood-type-via-amniotic.html
http://counterbalancedcoquette.blogspot.ca/2011/08/living-in-toronto-before-baby-is-born.html
http://counterbalancedcoquette.blogspot.ca/2011/08/how-to-become-living-liver-donor.html
http://counterbalancedcoquette.blogspot.ca/2011/09/past-week-meeting-otc-affected-baby.html
http://counterbalancedcoquette.blogspot.ca/2011/09/babys-blood-type-is-b.html
http://counterbalancedcoquette.blogspot.ca/2011/09/6-weeks-until-craziness.html
http://counterbalancedcoquette.blogspot.ca/2011/10/this-past-week.html
http://counterbalancedcoquette.blogspot.ca/2011/10/random-liver-transplant-facts.html
http://counterbalancedcoquette.blogspot.ca/2011/10/meetings-with-transplant-social-work.html
http://counterbalancedcoquette.blogspot.ca/2011/10/liver-transplant-donor-application.html

Week One at Toronto Sick Kids
Week Two at Toronto Sick Kids
Last Few Days and Beyond
Community of Love
National Infant and Pregnancy Loss Day




Links to Other Urea Cycle Bloggers

Katie's From Magerks to I Do's (Citrullemia)
Olivers Obstacles (Citrullemia)
Ethan Dowd (Ornithine Transcarbamylase Deficiency)
Morales Moments (Citrullinemia)

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